Edwards Syndrome

Edwards综合征；18-三体综合征;患者成活率极低，存活2年的病例罕见。患儿有突出的枕骨、低位畸形耳、小眼、先天性心脏病等外表和内脏畸形。
出生时常需复苏术。生活能力低，常出现呼吸暂停，吸吮差，多需鼻饲。虽精心护理，多在头2个月内死亡，极少患儿活到1岁，均有严重智力低下。

这么一个这个比唐氏综合征的命中率更低的基因病，除了当年的课本上，老实说并没有真的看过这种宝宝。毕竟当产前检查出来是这么一个宝宝的话，大多父母会选择放弃怀孕吧？ 更何况这种宝宝的存活率也不高。

可前些天终于让我见识到了这么一对父母，当产前检查出来宝宝有可能是Edwards综合症时，他们毫不犹豫地决定不必确诊了，因为不论如何他们都不会做人工流产。 抱持着对神的信赖和坚信，他们坚强地怀胎九月，宝宝卓恩足月出生了。

卓恩出生时，有着各种问题，立刻被送去NICU。纵然有着呼吸障碍、吞咽困难、心脏有孔等毛病，卓恩的生存意志力很强，在父母的陪伴下奋斗了三天。三天后，在呼吸衰竭抢救不成功后，卓恩在妈妈的怀中平安离去。

父母虽然悲伤，可是却更坚强地感谢上帝赐给了她们跟卓恩怀胎九月和三天的缘分。卓恩Destiny，虽然无缘认识成长的你，可我们都相信你活着的三天必会让很多人的人生有所改变。

欲知更多卓恩的历程，可阅读 http://www.trisomy18.org/site/TR?pg=fund&fr_id=1070&pxfid=8950

The communion of love

Went for a friend's Holy matrimony. Very simple and sweet.

Looking at David's facial expression, kanjiong & anticipating when the bride walks in, priceless!

May you both have a blessed and happy marriage, having each other.

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Happy birthday Daiyanti!

Didn't know she hasn't cut her cake, so bought another 4 pieces of cakes during visitation...

So yeah, we cut all the cakes together...Happy birthday!!!

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建邺婚礼

今天算是我第一次参加安顺的小学同学的婚礼。

虽然出席的熟脸孔不多，可是能见到十多年未见 (在fb除外) 的老朋友们，很是开心。
祝幸福快樂～

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醉，不需理由

郁闷的日子，唯一期待就是屠妖节前夕跟老朋友们见个面吃个饭... *外加喝点酒*

老朋友的聚会，没拍什么照片...  以下这张已经是夜深人静，一部分的人已经回家之后的事...

夜深了仍未想睡觉的众人，来玩一些小游戏，喝一喝。
跟老朋友在家里喝的好处：不用担心酒后驾驶，直接倒头大睡... 而且喝醉不需理由，也不用担心喝醉后会出事 :)
嗯，开心的夜晚~ *不过这一次还是没醉... 只是喝到很温暖很好睡*

Daiyanti & Tony's wedding

This is the second wedding I've attended within a month. 

Having to know her for more than 8 years now, and she's getting marry.

It's kinda private wedding reception where most of the guests are family members.

A white-lavender themed poolside wedding. Nice.

Even the drink is purple in colour! 

Kinda got a shock when I saw the purple. Cos obviously this ain't Ribena-purple..

Still it's quite nice, kinda sweet rose-syrup + Ribena-like taste... :)

May both of you be blessed & happy in your marriage.

Photo courtesy of Sabbitan Balakrishnan

They danced after all the song performances by family members & relative.

Too bad I left before the dance. What a beautiful scene.

happy lunch

Hadn't been having meals with the group since 2 weeks ago, kinda missed the randomness topic with them over meals so kinda invited them for lunch today. Most of them can't make it so here we are. Yee, Jane, me & Christina...

Yee says," I'm having lunch with you girls because i know you peeps won't talk about exam."

Ok, i'll take that as a compliment.

Will so gonna miss the meal time we have after everything is over.

Broga Hill –coming down-

When I was up on the first peak & was happily trying my friend's DSLR, somebody walked up & said "HI~"... I was so totally surprise to see an old friend from Ipoh, Wiliam~! Haha, he came with his uni mates from Kajang. Wow... All the youth days we spent in church, memory flash backs & it's such a joy to see old friends unexpectedly! Of course, a photo is a must!After lingering around until about 8pm, we needed to head back as some of them are in a rush. Thus we took a group pic & headed down...

But then again, EVERYONE is heading down so it's yet another round of traffic~

Thus me & a few friends waited while enjoying the breeze...

And as we slowly make our way down, we came upon this tree with a swing that we saw on our way up... *it was still very dark then thus not advisable to take photos at that hour =P*

Now that it's bright daylight, we actually saw a few pairs of shoes hanging on the branches of the tree..? Takkan it's a "wishing tree"?

As we continued our journey down, we reached the part where it actually kinda scary (to me) to see clearly that the small path you're walking on is just beside this "gaung"... When you're going UP in the dark, you won't notice it THAT clearly!

And we're so glad we actually reached the ground! A photo of the start of the trail to end it all...

I must say it's a joy to be up there but it's not going through the process... *but then again, maybe it's just me =P*

Broga Hill -going up-

Since I saw smashpop's photoshots of Broga Hill, I've been amazed that the beautiful & but being a lazy person whom don't like exercise, not to mention wanting me to go HIKING!!

This month, our cg suggested we go Broga outing 'cos last month other friends went & their photos were awesome thus Broga it is! Was kinda reluctant at first due to laziness (again) & Semenyih is quite a distance, what's more the suggested time to depart is… 4AM?! Yes, they wanna go for the sunrise. Anyway, this time due i was in charge of this outing thing, how reluctant my body yells, I still have to join, right? *Psyching myself: Just this once, take the nice hotos & no next time*

Everything went pretty well that morning (though from the status of fb the night before, it's rather obvious most people couldn't get their sleep) & we reached the starting trail of Broga Hill by 5:15AM. The surrounding was completely dark at that hour, without torchlight you practically can't see your way up.

According to web search & feedback from most friends, it's rather EASY to hike that you may reach the top within like... 30minutes ? But what they didn't mention is for people woth VERY POOR stamina like me, though it's a rather "short" distance, the steepness of the hill practically want my life hiking up! *thus I kinda rested along the way while the rest continued on aiming for the sunrise*

This was my view at the point of sunrise...

And slowly, I finally reached the FIRST Peak~ and this is the path continuing on to 2nd-4th Peak, which I didn't take...  =P

The contented me just stayed remaining Peak 1 to take pictures of the lalangs...

and I found this lalang that looked like a caterpillar...

Then as I was taking pic, David was done with his phototaking & I get to try out his DSLR~ *whee.. Seriously my first time trying a DSLR!*  Then I tried trying out with the sky, then landscape (see how far it can zoom), and some potrait...

and then back with the lalang again *grin*...

I wanted to try taking a very nice lalang photo (like one of those I see on web), I tried with a very nice light, but the lalang a bit messy... Then a very nice, clear lalang by its own, but the light a bit pinkish... Hmm... Anyway, I'm satisfied with the result just for now :)

Oops... Somebody caught me on film playing with the DSLR... Looked kinda horrid though =P

FB randomness

You know a person is totally addicted to facebook games when…

M: I wanna bake some cinnamon roll...
A: Cinnamon roll? You mean in "BAKING LIFE" or REAL one?
M: Real one lah... =.=

Thus we have fresh cinnamon rolls to eat after a few hours *grin*

Despicable Me

As most cartoon lovers will realised there's a very cute cartoon coming up with lotsa cute minions... & they're seriously VERY CUTE~~!! Yup, the movie is called "Despicable Me"

So with the coming up of this movie, United International Pictures Malaysia is giving away premier tickets jsut by taking a video of your young one(s) aged below 9 years old saying ‘Despicable Me’!

So I took a video of my couzie saying that phrase...

Ain't he natural? There was a bettter, cuter version but then the background voice & all were too disturbing thus this is Take 2... and he went naturally crazy... =.=

My Entry For Blog It!

"BFF"(Best Friends Forever)... I'm pretty sure lots of ya seen this word often used to describe close friends, especially GIRLS. Weird tho, I personally don't really fancy using the term of bff though i'm a girl.

Anyway, that doesn't mean I don't have close friends. Yes, I do have various close friends at different stages of life, and I love every one of these girls in my life.

I once wrote about a crazy night out back in my college days, one of my most memorable ones. So who were the crazy girls back then? Well, they're none other than the forever-so-madness Hanee & the quiet yet sporting Dai!

I still remember going to watch the Irish tap dance performance "River Dance" with them in Bukit Jalil~ AWESOME TIME!

Over the years even after college days Hanee & Dai became such close friends of mine, that we stayed in different places (Klang,  Seremban & Kulim), we'll have stay over at each others' house & their family members knows me, vice versa. We're such best buddy that when Hanee's sister got married, all of us went to the wedding...

and few years later when Hanee's brother got marry, we're all the way to Kulim for it! That was the first time I wore saree! *shy* The funny part of the wedding preparation was throughout the wedding preparation while we stayed over at Hanee's, I'm the only Chinese in the house. So while even Sally & Dai joined in the conversation in Tamil, the only thing I could do is watch the subtitles of the Bollywood film… LOL

Now that Hanee, Dai & Sally are still studying overseas, we'd try our best to meet up still every summer when they comes back, either travelling up or down.

Now that FAVOLA @ Le Meridien Kuala Lumpur is giving out chances to win a free meal for four, I'd like to invite Hanee, Dai & Sally! As Sally's graduating this summer while Hanee's birthday's coming up! It'll sure be a memorable meal at a special place!

Miss you girls~ Anticipating to meet you girls again this summer!

A Photo Post: Serious kid

Came across this old photo where my little kiddo cousin was so chubby & innocent~!

Even the serious look of him drinking his tea carefully is SO ADORABLE!!

Oh my, I seriously miss the old days..

*Picture taken back in Summer 2007*

Stuck!

Yesterday after church, and when i was about to go home, i realised my car couldn't start! It was kinda late in the afternoon and most people has gone home.

I was practically stuck in the car park in front of the church! I called my sis whom was still in Subang, yet she said she's on the way for a swim at her friend's place… *orz… swimming is more important than your helpless sis is it?*

Sent a few sms to few friends that might be nearby but no reply...

Called my brother, THANK GOD he's around Subang, and he immediately came to my rescue! He checked and realised the battery has dried up… *sigh... obviously i'm the typical lady driver whom never thought of checking car batteries...*

We went to get some battery water and filled it up it still can't start, we needed a jumper cable which we don't have...

At this point, I have the urge of rambling again so I simply sent another sms to Tai Loong. And THANK GOD I SENT THAT SMS~ Wow, because of his help, he manage to contact few others who were still in church and GOT JUMPER CABLE!!

Weee~ Thank God for my bro, Tai Loong,  Jin Chong, Tony & Kim Eng for rescuing my car ( & me)...

Lesson learnt: Need to start paying attention to the car, man... *and a simple help will really save a person's day~*

♨Bakuteh – Pandamaran 封肉

Last week, TL came back from Sabah and he felt like having Klang bakuteh. Thus the rest of the gang agreed and all came to Klang for it.

It was drizzling early in the morning. Such a cool weather for sleep-in, and yet here we are, waking up early just to meet up for breakfast. Haha.. It's ok, ANYTHING for good food & friends, right?

Before 9am, car 1 (me, Elsa  & David) were waiting at the SHELL station BEFORE Batu Tiga toll as being told to meet at 9am. While we wait, we cam-ho a bit... :)

  

Later only did we find car 2 mistaken the toll mentioned, and went all the way to Klang toll instead... Thus car 1 rushed to the spot to meet up.

Apparently it's not the first time driver car 2 mistaken the toll... Well, at least he did his best of offering himself as driver though he's not from Klang Valley...

Anyhow, we reached the bakuteh shop in Pandamaran, and ordered our meal.

This is the dry bakuteh aka “Pang Ba”封肉

while this is the typical bakuteh~

Of course, not forgetting to take some photos with the food...

Presenting (upper left) Xynia, the spokeslady for the day~!

(upper right) Ganesan posing with a smiley cupcake from Uhu! Uhu! we got for him along with his early birthday present!

(lower) Obviously these photos were just random shots of happy faces... *Suppose to be 7 of us, left out David*

Then after finishing our food, we sat there and talked about the supernatural events that we heard around... XD

Before leaving, Xynia suggested watching "How To Train Your Dragon" so we head over to Jusco Bukit Tinggi for it... Well, that's another story.

Great breakfast with great buddies :)

If you’re wondering where is this bakuteh, it’s  just around ( opposite ) SJKC Pandamaran B… *Use your GPS to find out, IF you have one*

河边吃鱼粥

2010的第一天，跟小姨一家人到了Perlama的某个河边餐馆吃午餐...此时是退潮的时候，可以看到riverbed...

远看还挺有feel的一张照片，可是近看的话...可发觉对岸的河床都是垃圾...

泥泞中的娃娃鱼和螃蟹，看见了吗？ 突然觉得这些鱼和螃蟹可怜，可是也不免佩服他们的生命力，这样的环境仍然可以生存！

不知道他在看什么... 连这样的风景也可以看得那么入神... 未来的孩子还有美景可以看吗？

 

在等待食物之余，我们泡了小姨从台湾带回来的阿里山高山茶。闻起来味道有点像铁观音...

 

皮蛋鱼粥上来啦~ 好好吃呗！ 看小孩子都吃得很享受咧~

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